So here is a quick update. I will give you all the bad news first. Easton and Carter are back on the oscillators which are the strongest ventilation they can be on. Their poor little lungs are just so premature that they keep collapsing. Carter should be back to the vent in a couple days, but poor little Easton is really struggling to keep his lungs inflated, this is partially do to with his diaphragm, which is higher than it should be and causing extra pressure on his right lung. Doctor Chiou says it could take months for the diaphragm to move like it should. Yesterday we found out that both boys have a staph infection and they have started them both on antibiotics. We talked to the neuro-surgeon Dr. McNatt today and he told us that Eastons head ultrasound showed that the ventricles have filled up with more fluid. He would like to put in the shunt but wants to wait until the antibiotic treatment for the staph infection is completed. So now we are looking at next week for that surgery to take place. I am still praying the fluid will drain on its own because I worry that with his respiratory problems right now he is not strong enough for surgery. Both boys are on fentanyl again because they hate being on the oscillator.
So for the good news! Carters head ultrasound showed no new fluid build up since last week and possible he might not need the shunt. Carter is up to 120 ml of milk each day and should be off all iv nutrition by tomorrow night. This means all his calories and nutrients are coming for my milk! Yeah!! All this pumping is worth while! Easton is up to 112 ml each day and should be up to full feeds in a couple of days.
Today's fun fact:
#1 Pampers preemie extra small diaper (up to 4 lbs.)
#2 Pampers preemie diaper (up to 6 lbs.)
#3 Pampers newborn diaper (up to 10 lbs.)
#4 Pampers diaper (8-14 lbs.)
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| Carter and Easton rock the #1 folded in half so it will fit. |
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