Sept. 20, 2011
I will start with all the news on Easton. Monday he had his head ultrasound which showed that his ventricles are slightly larger due to increase in fluid. I have not been able to talk to the surgeon about surgery but I am hoping we can put off surgery for good or at least wait till he is bigger and stronger. Yesterday afternoon Easton was extubated (taken off the vent) and was put on bubble Cpap much to my disliking! I had expressed my concerns to the doctor that Easton was not ready and strong enough for the Cpap. The doctors wanted to try Cpap anyways and told me that they could always switch him to Sipap if need be. So 6 hours later Easton was on Sipap and doctor Chiou said to me "I should have listened to mommy!" There is just something about a mothers intuition... Easton was working hard on the Sipap and I hated every minute of it! Of course we where rooting for him to succeed but it is definitely hard watching your son struggle for every breath. Easton lasted 24 hours on Sipap and tonight at 10 pm was put back on the ventilator. So sad to see but I pray my little boys lungs will get stronger and his diaphram will heal and go back to it's normal movement.
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My sweet Easton |
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Crazy looking Cpap! |
Carter has been having some really good days. He is now on 29ml of breast milk and 27 calories. Man does this make his farts and poopies stink!!!! Occasionally during cares we can take off his mask and play and talk to him. He is so lively and fun and I enjoy every minute with him. I even love the sound of his cry, I know that will get old fast but so far I just love it! Carters head ultrasound came back with no changes since the last ultrasound. We are still praying that all the fluid will eventually resolve. Carters oxygen requirements have been around 28% and they are dropping the settings on the bubble Cpap daily. I am hoping he will soon be on vapo-therm and I will be able to see more of his face without all those tubes. :) Here are some pictures from the past 2 days.
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I love holding my little man Carter |
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Crying baby and still so cute! |
Thankyou for sharing your prescious boys with us. We just love them so! Our family is rooting for yours & praying!
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ReplyDeleteI'm so sorry they didn't listen to you. The old saying "mother knows best" is so true. We just have feelings others don't understand. Thank you for the update, I think about you, Steve and the babies every day.
ReplyDeleteHello! Just wanted to know I've been following your blog, and praying. I've got an angel baby in heaven, and I've asked him to help keep watch over your boys. I just know they're going to pull through this and be SO strong!!! YOU SHOW THEM CARTER AND EASTON!!!
ReplyDeleteIt's amazing how fast they are growing and how time flies. They are so adorable. Prayers are being sent for your family.
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